Information & Support Resources

— RONDA AYALA, R.N.

Neuroendocrine & Pancreatic Cancer Resources

• Neuroendocrine Cancer Awareness Network (NCAN)
• Pancreatic Cancer Action Network (PanCAN)
• NET Patient Foundation / Pancreatic Cancer Action (UK)
• Pancreatic Cancer UK
• North American Neuroendocrine Tumor Society (NANETS)
• Unicorn Foundation (Australia)
• Lustgarten Foundation (Pancreatic Cancer Research)

Facebook Support Groups

• Whipple Warriors (UK)
• Whipple Warriors Grief Support
  
• Post Whipple Pain Attacks
• Ampullary Cancer Survivors
• Bile Duct Cancer Survivors
• Cholangiocarcinoma Survivors
• Frantz Tumor (Solid Pseudopapillary Tumor) Survivors

Other Cancer Support

GIST Support International

Help with Medication Costs (Mainly US-based)

• Clinic of Angels:
  A nonprofit helping chronically ill patients with financial resources. 
• NeedyMeds:
  Helps people find assistance programs for medications and healthcare costs.
• Bridges to Access:
  Offers free non-oncology medicines to qualified patients.
• Partnership for Prescription Assistance:
  Helps uninsured patients get needed medicines, often free or at low cost.
• GSK Access:
  Provides GSK prescription medicines to qualified Medicare Part D patients.
  
• Creon Cost Assistance